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News & Events

The Rett Syndrome Journey: Pathways to Follow

Our InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.

News & Events

"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndrome

You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.

News & Events

HBF Run for a Reason 2014

On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

Service use

Parents and carers reported on the health, school, telephone counselling and online services used by young people, as well as any medication taken.

Pneumococcal Vaccine Study

Researchers at The Kids Research Institute Australia are studying a new pneumococcal vaccine designed to provide a broader protection for 21 serotypes of the bacteria S. pneumoniae – 8 more serotypes than the current vaccine given to new babies.

Need help?

If you have any concerns, you can visit your GP or contact Lifeline, beyondblue, Kids' Helpline, headspace, Reach Out or Relationships Australia.

The PRIME Study

Vaccine Trials Group with Sir Charles Gairdner Hospital is conducting a trial of a vaccine against Clostridium difficile infection (CDI) in at-risk individuals.

Videos

Watch videos from the Young Minds Matter team

Research

Development of a sustained release implant of benzathine penicillin G for secondary prophylaxis of rheumatic heart disease

Regular intramuscular (i.m.) benzathine penicillin G (BPG) injections have been the cornerstone of rheumatic heart disease (RHD) secondary prophylaxis since the 1950s. Patient adherence to IM BPG is poor, largely due to pain, the need for regular injections every 3-4 weeks and health sector delivery challenges in resource-limited settings. There is an urgent need for new approaches for secondary prophylaxis, such as an implant which could provide sustained penicillin concentrations for more than 6 months.