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In this The Kids Research Institute Australia subsite, our Rett syndrome research team manages a national and international database of Rett syndrome.
News & Events
Round one done, eight to go for the SToP TrialSix weeks, nine community visits and 380 kids – it’s a wrap for round one of the StoP Trial!
Research
Bilingualism, Parental English Skills and Child and Adolescent DevelopmentThis project will provide important policy directions for design of language educational programs in Australian schools, developing a multi-cultural society, multi-lingual workforce, sourcing of immigrants from different language backgrounds and English abilities in order to obtain the best developmental outcomes
News & Events
Prevention better than cure in race to slash rates of TBThe first global review of the effectiveness of current strategies to fight tuberculosis has found preventive therapy is the most effective intervention strategy.
News & Events
Spotlight on kids' menus shows almost all are unhealthyThe first Australian study to evaluate the nutritional content of Kids’ Menus at restaurants and cafés has found the overwhelming majority are unhealthy.
Research
Experience of gastrostomy using a quality care framework: The example of rett syndromeGastrostomy assisted the management of feeding difficulties and poor weight gain, and was acceptable to families
Research
The trajectories of sleep disturbances in Rett syndromeThis paper demonstrated that the evolution of sleep problems differed between subgroups of girls and women with Rett syndrome, in part explained by age and...
Research
Maternal prenatal stress exposure and sex-specific risk of severe infection in offspringMaternal stressful life events during pregnancy have been associated with immune dysregulation and increased risk for asthma and atopy in offspring. Few studies have investigated whether prenatal stress is associated with increased overall or specific infectious diseases in childhood, nor explored sex differences. We sought to examine the relationship between the nature and timing of maternal stress in pregnancy and hospitalisation with infection in offspring.
Research
Content Validation of Clinician-Reported Items for a Severity Measure for CDKL5 Deficiency DisorderCDKL5 deficiency disorder (CDD) results in early-onset seizures and severe developmental impairments. A CDD clinical severity assessment (CCSA) was previously developed with clinician and parent-report items to capture information on a range of domains.
News & Events
Nutrition and COVID-19Nutrition is important during the COVID-19 pandemic because it can provide both physical and mental health benefits.