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Establishing a national platform for the provision of evidence based practice in Prader-Willi syndromeHelen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763
Research
International Rett syndrome study: InterRettHelen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763
Research
Multi-site validation of a suite of clinical outcome measures for clinical trial readiness in the CDKL5 Deficiency DisorderHelen Jenny Peter Leonard Downs Jacoby MBChB MPH BApplSci (physio) MSc PhD BA (Hons) MSc Principal Research Fellow Head, Child Disability
Research
The natural history of the MECP2 Duplication disorder: Australian surveillance and plans for development of an international registerHelen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763
Research
Data for policyThe ultimate goal of this project is to enable policy-makers and researchers to work together to influence positive changes in the life trajectories of disadvantaged Australians via research driven policy initiatives.
News & Events
Why it’s safe for kids to be at schoolAs Australia battles with COVID-19 outbreaks across all mainland states, there is a sense of familiar dread as major cities plunge into lockdown.
News & Events
The Kids researcher awarded prestigious EU Horizon 2020 grantProfessor Cate Taylor, is part of an International cohort of researchers to secure over €1.45million in grant funding from the EU’s Horizon 2020 programme.
Research
National School Readiness ProjectResearchers at the Institute were engaged to undertake the National School Readiness Project, which aimed to describe current practice across education authorities in assessing or describing child development status at school entry and use evidence to identify areas where the scope/quality of curren
Stopping Acute Rheumatic Fever Infections to Strengthen Health
Stopping Acute Rheumatic Fever Infections to Strengthen Health